Clinical management, psychosocial characteristics, and quality of life in patients with homozygous familial hypercholesterolemia undergoing LDL-apheresis in Turkey: Results of a nationwide survey (A-HIT1 registry)


Kayikcioglu M., Kuman-Tuncel O., Pirildar S., YILMAZ M., KAYNAR L., Aktan M., ...Daha Fazla

JOURNAL OF CLINICAL LIPIDOLOGY, cilt.13, ss.455-467, 2019 (SCI İndekslerine Giren Dergi) identifier identifier identifier

  • Cilt numarası: 13 Konu: 3
  • Basım Tarihi: 2019
  • Doi Numarası: 10.1016/j.jacl.2019.02.001
  • Dergi Adı: JOURNAL OF CLINICAL LIPIDOLOGY
  • Sayfa Sayıları: ss.455-467

Özet

BACKGROUND: Homozygous familial hypercholesterolemia (HoFH) is a rare, life-threatening inherited disease leading to early-onset atherosclerosis and associated morbidity. Because of its rarity, longitudinal data on the management of HoFH in the real world are lacking, particularly on the impact the condition has on quality of life (QoL), including the impact of the extracorporeal lipid removal procedure apheresis (LA).