Care Burden and Quality of Life in Family Caregivers of Palliative Care Patients

CENGİZ Z., Turan M., Olmaz D., Erce C.

JOURNAL OF SOCIAL WORK IN END-OF-LIFE & PALLIATIVE CARE, cilt.17, sa.1, ss.50-63, 2021 (ESCI) identifier identifier identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 17 Sayı: 1
  • Basım Tarihi: 2021
  • Doi Numarası: 10.1080/15524256.2021.1888844
  • Dergi Adı: JOURNAL OF SOCIAL WORK IN END-OF-LIFE & PALLIATIVE CARE
  • Derginin Tarandığı İndeksler: Emerging Sources Citation Index (ESCI), Scopus, Academic Search Premier, ASSIA, IBZ Online, Abstracts in Social Gerontology, CINAHL, EMBASE, MEDLINE, Psycinfo, Social services abstracts
  • Sayfa Sayıları: ss.50-63
  • Anahtar Kelimeler: Care burden, family caregivers, palliative care, quality of life
  • İnönü Üniversitesi Adresli: Evet

Özet

This research was conducted for the purpose of examining the care burden and quality of life in family caregivers of palliative care patients. The research design was a descriptive correlational study conducted with the caregivers of 163 patients residing in palliative care units. Data were collected via a demographic survey, The Zarit Burden Interview (ZBI) and the World Health Organization Quality of Life Assessment (WHOQOL). The results showed that there was a negative correlation between ZBI and WHOQOL scores. Further, there was a significant negative correlation between many subdimensions of the ZBI (general quality of life, general perception of health, being satisfied with daily life skills, home conditions, energy and self-satisfaction) and the WHOQOL. Quality of life thus appeared to be reduced in family members with a high level of care burden and that the quality of life of caregivers depends on the individual characteristics of the caregiver. Social workers, nurses and physicians should regularly assess the burden and quality of life of caregivers.